You Know You Are the Parent of a Food Allergy Kid When...

For those of you that have not been there yet, check out the totally awesome site Kids With Food Allergies. (Yes, I was a Valley Girl in my youth. Really, I grew up in the San Fernando Valley - home of the Valley Girl) It is a really great place with lots of great information.

While I was reading the support forums, I came across a great post that made me laugh at our not so funny situation of being parents of a child with food allergies. Check out the post "You Know You are the Parent of a Food Allergy Kid" here.

Some of my favorites are...

"...DD playing "Mommy" with her doll is feeding from the WHITE (Neocate-color) disappearing liquid bottle after totally rejecting the orange one and then giving Baby a neb treatment.

You know you're a pofak when finding a new safe candy bar gets you as excited as a little kid on Christmas morning. And, you have to tell the stranger standing behind you in the line why you are so excited.

...you can glance at a list of 20+ ingredients in minuscule font and pick out all of your allergens (including derivatives) in less than a second."

Of course this inspired me to think of a few of my own...

You spend hours deciding on what sort of product you should carry your child's epi pen in, and then a few more hours deciding if you should get the carrier in red race car fabric, or the cool floral. In the end you finally decide to buy both so you can have your choice of which you want to carry.

You unabashedly hate an advertising figure, and blame him for the downfall of modern civilization simply because it is an advertising figure for the food your child is deathly allergic to.

So there Mr. Peanut - I hate you and am proud of it!!

Even though you can not cook to save your life, you learn to bake and decorate nut free, egg free and dairy free cakes in the shapes of dolls, 3-D cars, and every character imaginable, just so your allergic child can have a birthday cake that is cooler then everyone else's bakery bought ones.

When you first make the wacky cake recipe you learn that if you combine vinegar and baking soda, you can make a cool volcano type eruption.

You know that there is such a thing as egg free mayonnaise, and that it really does taste pretty good.

All your son wants for his 4th birthday is a red medical alert bracelet.

I am sure I have tons more, but I am all tapped out for now. I would love to hear other peoples.

I Found My Perfect Dog - The Peanut Detector Dog

Since Buster the pug has been getting up there in years, and had the big cancer scare, we have considered getting another dog to add to our household. Although Conor tested off the scales allergic to everything including dogs, we have had Buster since before he was born, and with general precautions like keeping Buster out of the bedrooms, and regular washing/grooming, Conor seems to be ok with him.

So, I started doing some research into what sort of dog we would be interested in next. Although Pugs are totally awesome little dogs they do SHED ALL OVER EVERYTHING!. Mick was also interested in getting a bit bigger dog, since we have the space for it since we moved. Much to my delight, I discovered that there are many non-shedding dogs such as the Poodle, Shit Tzu, Kerry Blue Terrier, and the greyhound. While I liked all these dogs, I was not sure how good they were for our family with three sweet little things running around. Then I came upon my answer - the Doodles. That is right, the Labradoodle, and the Goldendoodle. These dogs are combinations of Labradors and Golden Retreivers and poodles. They have the great disposition of the Labs, but are breed to have the non shedding coat of the Poodle. WOOO HOOOO

On my final scan of the Internet, I then came across my dream dog. The Peanut Detection Dog. That is right, a dog that can detect peanuts with a whiff of its nose.

These are special breeds of dogs specially trained to recognize the scent of minuscule amounts of peanuts, pretty much like those trained to sniff explosives or narcotics

According to their website peanutdog.com

"A Peanut Detector Dog is a valuable tool for a person with an allergy to peanuts. Since a dog’s sense of smell far surpasses that of humans, detection of odors is a perfect job for these dogs. Our Peanut Dogs, undergo extensive training, are easily able to detect minute quantities of peanuts in any form; raw, cooked, oil, butter, dust, etc."

Imagine, going to a restaurant with Fluffy the peanut detector dog, and letting him sniff everything on Conor's plate before he eats it to make sure it really is peanut free like the waiter said. Fluffy can scan the park and discover hidden jars of peanut butter, or a misplaced peanut butter sandwich. He could probably even sniff out Mr. Peanut from a slew of advertising papers. Think of the possibilities.

All my excitement crashed down however, when I saw the price...... 10,000 dollars. Yikes!!!

I can dream however. Maybe I will win the lottery.

Blood is Thicker Than Peanut Butter

Although I was not present, I was told this wonderful story about my children by our Au Pair Natalia. Natalia took all three sweet young things to the local park to play one afternoon while I was gallivanting around town.

Since they are so close in age, our home is filled with fighting, bickering and general turmoil and upheaval between the youngins. They fight over everything, and anything.

Here are some examples,

Child, "I want that domino"

Me, "there are 75 other domino's that are exactly the same"

Child, "but I want the exact one he is playing with."

Other Child, "I want that one and only that one too.

Here are some other things commonly heard in our home,

"Mommy, he/she touched me"

"Wwwwaaaaaaaa he bit me"

"That is mine and you can not play with it!!"

"OOOWWWWWW"

"NNOOOOOOO"

Me,"Help!!!"

So anyways, while they were at the park, they noticed a giant jar of peanut butter sitting out on one of the picnic tables. Having been well trained by their obsessive and paranoid mother, they jumped into action to protect the safety of their little brother. After securing the perimeter of the peanut butter laden area, they decided they needed to go home and make signs to put up around the park to let everyone know the dangers of peanuts to the peanut allergic. When I got home I discovered everyone working diligently around the table coloring in peanuts and putting x's through them. They made about 10 signs and were very determined to share their knowledge with the world. Unfortunately Natalia was unaware of the proper way to spell peanut, and all the signs declared loudly - NO PEANAUTS - DANGER.

I was so touched I gave everyone a big hug, and told them how proud I was of them for looking out for their brother. They really wanted to go back to the park to wallpaper it with their signs, so I had to explain that unfortunately the part is a public area, and although peanuts are my arch enemy, many people like and enjoy them, and have every right to bring them to a public park. As a compromise they agreed to just decorate our stroller and sand toys with the signs, so everyone would know to keep peanuts away from them.

I guess blood is thicker then peanut butter.

A Peanut Pig!!!!

I Have a Confession to Make

Ok, I know what you all are thinking.....Where in the world has Super Epi Pen been??? I have a confession to make.... We did a great spring cleaning in the middle of the winter over the holidays, and somehow every time I clean I manage to lose things. I have cleaned and organized the play room, the living room, and the kitchen. In the process of all this organizing I have somehow lost Michael and Conor's music book, their music CD, and my really cool dressed up epi pen - super epi pen. Don't worry, he is not hanging around just anywhere to be played with or abused, I put him somewhere so safe, so secret, I don't even remember where it is.

I know, maybe he is really off saving the world, or just someone from an anaphalytic reaction. Maybe he is flying through the sky right now in pursuit of truth, education, and freedom from severe allergic reactions. Maybe he is upset about all the stupid journalists and wants to set them straight. I know, maybe he was invited to the Inauguration in Washington DC today. Anyways, don't worry, I am sure he will be back soon. Super Epi Pen never lets anyone down......

Stop the March, I Want to Get Off

I was talking to a friends sister the other day, and the topic came up as to whether her 2 year old food allergic child was going to have asthma. I asked her if her son was on the Allergy March. She looked confused, and stated she had never heard of such a march. I tried to explain it to her, but made a terrible attempt at organized thought.

I had first learned of the "Allergy March" upon visiting our first good allergist (not our first allergist though - evil Dr. story I am still angry about). I was saying how I was concerned he might have asthma, as we ended up on albuteral every cold, but all his Dr.s were saying no. The Great Allergist asked me a few questions about eczema, prior illnesses, and his food allergies, and told me in a way only he could. "I can not diagnose anything officially right now because he does not have any symptoms, but between you and me and the doorknob, I am sure he has asthma". I was relieved as I had a feeling and said, "I thought I was crazy, but I had a feeling he did." The Cool Allergist replied, "You may very well be crazy, but you are not crazy to think he has asthma." He then went on to explain the Allergy March. (Also known as the Atopy March)

Below are some articles and resources that explain it far better then I ever could. Click on the links for the complete articles.

Is it Allergy.com


Allergic sensitivities may affect not only a child’s symptoms today, but also his or her long-term health. In the small child, elevated food-specific IgE antibody levels are associated with significantly elevated risk of developing inhalant allergen sensitivities later in childhood.1 Ultimately, asthma may result from a cascade of atopic illnesses known as the pediatric Allergy March. In the Allergy March, symptoms manifest from low-level food and/or inhalant sensitivities and can trigger a progression of diseases from atopic dermatitis to gastrointestinal distress, recurrent otitis media, allergic rhinitis, and ultimately asthma—often by the age of 3 to 4 years.2,3 Although atopic illness often follows the common progression of the “march,” allergic sensitivities may emerge with symptoms of any one of the five conditions—and may involve more than one allergic illness at a given time.



Science Blog

Unfortunately, there can also be unpleasant milestones, such as allergic diseases occurring at a specific age range. These include eczema shortly after birth, gastrointestinal diseases as the child approaches age two, and asthma and other upper respiratory diseases starting at age three and lasting through young adulthood. This is the "Allergy March."


The Atopic March

The atopic march refers to the natural history of allergic
or atopic manifestations characterised by a typical
sequence of clinical symptoms and conditions appear-
ing during a certain age period and persisting over a
number of years. Characteristic of the clinical signs is
that some features become more prominent with time
whereas others diminish or disappear completely.
In general the clinical features of atopic eczema occur first
and precede the development of asthma and allergic
rhinitis.

The Science of Stupidity

I am sure that anyone who reads this blog is already painfully aware of the utter idiocy of some journalists who have recently published articles about how their theories of science support nothing but their own Science of Stupidity. I get it that they were trying to be funny and sarcastic and witty (I know all about these things) by playing the nut card, but jeez, not so funny and witty when it discredits and calls into question a documented medical illness. Now lets have a chuckle about kids with Diabetes, Cancer and AIDS. Wow, good times....

So, instead of calling attention to the stupid journalists, I thought I would try and to compile all of the really great responses I could find. The one good thing to come out of others stupidity is that a discussion has been created and many great bloggers and journalists have given well informed, heartfelt rebuttals. Instead I choose to celebrate them. Read on....

Louise on the Left
Nut Allergies- A Yuppie Invention - As If


The Nut Free Mom
Shedding Some Light On the Nut Allergy Backlash


Strollerderby
Peanut Allergies, Peanut Smallergies


MaMaPoP
LA Times Writer Gets My Irish Up


Food Allergy Mama
Edward R. Murrow Would Be Rolling Over in His Grave


Rational Jenn
I Am Not an Attention-Seeking Psycho


Paging Dr. Gupta
Food Allergies: Not So Nuts After All


Sure Foods Living
What Some (Ignorant) People Think About Food Allergies


Noted and Blogged
Forget the Epi-Pen, It's All In Your Head. Not Mine Though, I Can't Keep Anything In There.


And Now It's All This
Joel Stein is an Asshole

Please let me know if I have missed any other worth responses..